…he chose a private cremation and just us to celebrate him – a husband and father and brother and friend to a close chosen few. This turned out to be…
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Planning ahead
…or general practitioner for more advice. Templates for Advance Directives are available on the New Zealand Medical Association and Health and Disability Commissioner websites. More information is also available on…
2018 Research Update: Clinical Trials
…loss. • Inflammation and microglial activation is common in neurodegenerative diseases. In MND, destructive microglial activation is accompanied by expression of pathogen-association molecular patterns and multiple damage-associated molecular patterns. •…
Australasian MND Symposium – live blog (Day 1)
…define fALS: frontotemporal dementia, schizophrenia, ataxia. The terms familial ALS and sporadic ALS are outdated and illogical, says @AmmarAlChalabi –and it’s time to ditch them. #ALS #MND https://t.co/TKD6WFdolh pic.twitter.com/XDLBsZnjJw —…
Australasian MND Symposium – live blog (Day 2)
…ALS Assoc has been comitted to investing in large data – clinical and environmental information. Really need to understand more about the whole of a person living with MND and…
Transport and getting about
…record of your needs (www.abta.com/tips-and-advice/accessible-travel). Add this to a file of paperwork to take with you, along with copies of clinic letters, confirmation of diagnosis, and a list of medications….
Australasian MND Symposium – live blog (Day 3)
…are meaningful and incremental. Patients early on in disease with diffuse disease and fast-moving – showed a 33% reduction in rate of progression. Represents a significant advance in ALS care….
Life members
…emerging fieldwork service and opportunities for fieldworkers to meet and develop their knowledge and skills evolved. Some highlights: Collecting after the Seekers concerts; goodwill and liaison with Australian groups; agreeing…
2018 Research Update: Drug Development
…Three drugs approved for ALS. Rilutek and Radicava are disease modifying. Neudexta provides pseudobulbar affect symptom relief. Explore therapeutics approaches as any one could make a big impact on ALS…
2018 Research Update: Clinical Management
…CEO of Control Bionics Inc, Australia robwong@controlbionics.com • Wearable and wireless EMG assistive communication and control device, developed in Australia. Allows switch-like access to computer, choose commands based on left-right…